International Thalassaemia Day and our Vaccination & Screening Equalities Update
Five facts about thalassaemia – International Thalassaemia Day (8 May 2025)
Thalassaemia is a rare inherited blood disorder that affects how the body makes haemoglobin – the protein in red blood cells that carries oxygen.
People with thalassaemia produce either too little or no haemoglobin, which can lead to life-threatening anaemia and other complications. Raising awareness helps more people understand the condition, get tested, and support those affected.
Here are five things everyone should know:
1. It’s inherited – and both parents must carry the trait A child only inherits thalassaemia if both parents are carriers. Carriers usually don’t have symptoms and may not know they have the trait.
2. Around 35 babies are diagnosed in England each year Screening in pregnancy and newborn testing help identify thalassaemia early, giving babies the best chance at effective care.
3. There are two main types: alpha and beta Beta thalassaemia major is the most severe form. Both types can be mild or serious, depending on how many genes are affected.
4. People with beta thalassaemia major need regular transfusions Many need blood transfusions every 2 to 4 weeks. Others may need fewer. You can support them by becoming a blood donor – visit www.blood.co.uk or download the GiveBlood NHS app.
5. Anyone can carry the trait, though it’s more common in some groups People of South Asian, Mediterranean, Middle Eastern and Southeast Asian heritage are more likely to carry the trait. Free NHS testing is available via your GP.
Thalassaemia screening in pregnancy All pregnant women in England are offered screening for sickle cell and thalassaemia early in pregnancy. If both parents carry a gene, further testing is offered to assess the baby’s risk.
Recent Comments